A teenage girl with a rare physical condition has called out ‘men’ at Schoolies aggressively asking about her face tube.
Ms Thomas is sporting a nasojejunal (NJ) tube down the side of her face, which makes her stand out in a crowd.
Brisbane based Hilary Thomass posted a video on TikTok with a clear message for those who are said to be drunkenly probing about her appearance – ‘just don’t
Ms Thomas lives with a nasojejunal (NJ) tube down the side of her face, which often sees people query her appearance
The thin, soft device is placed in her nose, goes through her stomach and ends in the jejunum (jue-joo-num), a part of the small intestine.
‘My intestines are partially paralysed, which makes eating and drinking very difficult,’ she says.
‘I have it (face tube) because I have gastroparesis and intestinal paresis.
‘It is painful and I often have nausea… and I am fed via a tube virtually 24/7.
‘I take a backpack to school, which is slightly embarrassing, but I get over that.’
Many people offered their support to Ms Thomas after she was vented online about the encounter.
‘Forget the hate, live life to the fullest,’ one suggested. Another said ‘you are beautiful either way.’
In a earlier TikTok clip, Ms Thomass explained in detail how her face tube works each day
The determined teenager is determined to live her best life (pictured, at her school formal)
What is a nasojejunal (NJ) tube?
- A nasojejunal (NJ) tube is a thin, soft tube that is put in through the nose, goes through the stomach and ends in the jejunum (jue-joo-num), a part of the small intestine
- The NJ tube is soft and flexible so it can pass through both areas comfortably
- In the jejunum, food and medication are quickly absorbed into the body
- The tubes are intended for short-term use. They need to be changed regularly, depending on the type of tube